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If you want to go fast, go alone.  If you want to go far, go together.

- African Proverb

Dear Friend of SRF,

SRF has a long way to go, that is why Collaboration is the first word in our motto.  Today we celebrate a collaborative grant with multiple other rare disease groups to Dr. Thomas Frazier.  

It is going to take numerous teams to develop therapies for our loved ones.  One of the reasons we host these webinars and conferences is to connect researchers with each other and our families.  Check out the upcoming Webinar with Prof. Kind and if you speak Spanish, join our Congreso Científico.   

Those teams need to understand our patients and their stories.  This is why we have our #WarriorWednesday program and why we made the #CelebratingCaren movie.  Read the 99 warriors we have on our site, sign up to be in the next 100, and watch the movie.

We have so far to go, but we are building a tremendous team for this journey.

Join us,

Mike

Tony's Dad & Managing Director of SRF 

 

Press Release: #SRFFrazier

To all those who supported this effort or the January Facebook fundraisers, thank you.  The grant is fully funded.  Read today's press release below!

 

Three Events Coming Up - Register Now!

Join our next webinar with Peter Kind, PhD from the Univesity of Edinburgh.  His talk is titled Behavioural and cellular pathophysiology in a rat model of SYNGAP1 haploinsufficiency.

Thursday, February 11, @ 9 am PST.

 

Únase a nosotros a el Primer Congreso Científico Virtual SYNGAP1 en Español. #SRFCC1

 

El viernes 19 de febrero a las 8 am EST.

 

Watch the premiere of #CelebratingCaren, a movie about the life of a 65 year old SynGAP patient diagnosed in 2020 followed by a panel discussion with the directors & cast. 

Friday, February 26 @ 4:30 pm PST.

 

Does your  genetic report contain a Variant of Unknown Significance (VUS) in SYNGAP1?

Many families get a VUS before they get a Pathogenic Genetic Report.  What on earth does that mean?  What should you do if you have a VUS?  Learn from SRF's own JR, a SYNGAP1 parent & a PhD in Genetics.

 

Two ways to support the community: Read & become a Warrior.  Join the SYNGAP1 Ciitizen Registry.

 

There are a few spots left in the current cohort.  If you have a SYNGAP1 loved one in the US, please sign up.  The data will accelerate research.

Follow us!

Stay in touch with us!

SynGAP Research Fund, 501(c)(3)
1270 Lincoln Avenue
Palo Alto, California 94301
(650) 441-4191
Mike@syngapresearchfund.org

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