Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.
― Thích Nhất Hạnh
Dear Friend of SRF,
We have had two gatherings in the past few weeks that were extraordinary--they gave us hope. The first Spanish Scientific Congress far exceeded our expectations with over 200 attending live to hear our 12 speakers. (Talks will be on SRF YouTube soon.) Then, this weekend we gathered with 150 live attendees to watch #CelebratingCaren together. Many new connections were formed and our community continues to grow.
The Science team is working on a number of new grants which we will be sharing soon, but what we can tell you is that research takes resources, so we have launched the #Sprint4Syngap, a 5k fun run you can do anywhere. Please join or start a team and start fundraising.
Funding research creates jobs for scientists in labs working on SYNGAP1. Not only does this get big brains focused on SynGAP now but it also returns dividends through the lifetimes of these researchers. If you are a PhD looking for a post-doc, note these jobs:
We need this work to happen fast -- our families are working too hard just to keep up. Watch this video of a family who is moving to another state to secure benefits for Emmitt’s care. We applaud their foresight and tireless efforts for their son. If you are curious about how your state compares, check out KidsWaivers.org and the State Report card.
- We hit 100 enrolled on Ciitizen, but 7 are VUS, so we still have 7 spots for US families, sign up now.
- Congratulations to Virginie for joining Ciitizen, we are proud of you.
- Two upcoming webinars on ABA (Saturday) and CRISPR (April). Sign up on the #SRFwebinar page.
- We’ve got some killer new merchandise! Visit the SRF store for great design.
There are still many opportunities to help accelerate SynGAP Research. If you have time to spare, please reach out, we need more volunteers with all skill sets.
Time is brain,
Tony's Dad & Managing Director of SRF